Wednesday, February 24, 2010
Thinking Back, Looking Forward
Two months ago today on December 24, Christmas Eve, I was at the hospital with my dear lovebug. Our roller coaster ride was just beginning. That night, lovebug nearly died in my arms, was taken to ICU, as I was taken downstairs to the emergency room nearly in diabetic acidosis. Talk about stress!! All I wanted was to see my lovebug, and he was upstairs in ICU asking to see me. When my sister in-law came to see me in the emergency room, she had her camera with her. She had taken a picture of lovebug, when she showed me his picture, I kissed it and cried even more. When they finally let me go upstairs to ICU, I ran to lovebugs bed. I was so happy to see him, words could not express how I felt. We were in the hospital from December 23-December 31. What an adventure. At first they thought lovebug had a stroke, but then they ruled that out. Then, they said it was possibly MS, but then they ruled that out. Talk about frustrating, not knowing what was happening to my lovebug was beyond frustrating. Then, they finally told us it was Gillian Barrie syndrome, so we were trying to adjust to that news. Well, then he had another nerve conduction test done, and after they got the results from it, they told us he did not have Gillian Barrie syndrome, instead, he has the sister disease to MS, called CIDP. So, now we are trying to deal with this diagnosis. Lovebug is numb from the waist down, when he was in the hospital, and when we first came home, his left hand and arm were numb also. Praise God, his hand and arm are no longer numb. But, he remains numb from the waist down. He had infusion treatments last week, and for the rest of the year, he will go once a month for a treatment. He has been going to physical therapy, but that ends this Thursday. He has not worked since December, has been drawing temporary disability from his job, which is $175.74 a week. I have applied for SSI, still waiting to hear if I am going to be able to get anything. Right now, we do not know if lovebug will be able to go back to work on light duty or not, will find that out on March 11 when he sees his doctor. Please continue to pray for us. Lovebug really wants to go back to work, and I pray that he will be able to. I believe that God will heal him. Financially, God has graciously provided for us through the help of so many of you. If my dear blogging family had not made donations to the lovebug fund, we would not have been able to pay our rent or car payment. Thank you will never express how we feel. Your kindness and love to us, means so much. It is scary being in this situation, but God is with us, so that makes it all better. Sorry this post is so long, but wanted to share what is on my heart.