Hello everyone, sending love, hugs, and many prayers your way. I wanted to update you on my dear lovebug. He went to see the neurologist yesterday to have an EMG.
An electromyogram (EMG) measures the electrical activity of muscles at rest and during contraction. Nerve conduction studies measure how well and how fast the nerves can send electrical signals. Nerves control the muscles in the body by electrical signals (impulses), and these impulses make the muscles react in specific ways. Nerve and muscle disorders cause the muscles to react in abnormal ways.
Measuring the electrical activity in muscles and nerves can help find diseases that damage muscle tissue, or the nerves. It confirmed that he definitely has Chronic Guillain Barre Syndrome. What is Guillain Barre Syndrome?
Guillain-Barre syndrome is an uncommon disorder in which your body's immune system attacks your nerves. Weakness and numbness in your extremities, are usually the first symptoms. These sensations can quickly spread, eventually paralyzing your whole body. They are going to set him up for a weeks worth of
IVIG treatments. What is IVIG used for?
IVIG is approved by the FDA for use in the treatment of the following diseases: Kawasaki disease, dermato/polymyositis, idiopathic thrombocytopenic purpura (ITP), Guillain-Barre syndrome, polyneuropathy, some viral diseases, and some forms of immune deficiency. IVIG is often the first treatment choice for patients with Kawasaki disease or ITP. For other diseases, it is used after other forms of treatment have failed.
In addition, IVIG appears to work in systemic lupus erythematosus, antiphospholipid syndrome, vasculitis, multiple sclerosis, myaesthenia gravis, and a wide range of other diseases characterized by abnormal immunity. In these cases, particularly because IVIG is very expensive, it is usually necessary to obtain approval from your insurer before the drug can be prescribed. (Again, IVIG is usually used in these diseases only after other forms of treatment have failed.)
How is IVIG given?
IVIG is given intravenously (dripping liquid slowly through a vein) over several hours. The treatment is usually repeated for 2 to 5 days. Further, it may be repeated at 1 to 3 month intervals until a satisfactory response is obtained.
Body weight and specifics of illness determine the actual dosage. For instance, a common dose regimen is 0.2-0.4 grams of IVIG per kilogram of patient weight for 4 consecutive days, to a total of 2 grams/kilogram (0.7 grams/pound). For a 144 pound person (the typical 70 kilogram man), this would translate to 140 grams), dissolved in salt water.
The infusion time will also vary depending on the amount given per day and the person's tolerance. Your infusion rate will start slowly and gradually increase over the course of the infusion. A typical infusion of IVIG can take several hours.
So, please continue to pray for him. Also, pray for us financially. We appreciate your prayers more than you will ever know.