Well my friends, my appointment lasted two hours today. She did a lot of testing, including nerve tests on my bowels, and muscle testing of my bowels, and an ultrasound of my bowels. Good news-She is a wonderful Doctor, really like her, and her entire staff. Bad news-There was no good news today. First of all, I have chronic colitis. It is a chronic infection of the colon causing inflammation, and infection. She put me on some very strong medicine for this problem. Two capsules a day, twice a day for 8 weeks. Then, I increase them to three capsules a day, three times a day. Then four capsules a day, four times a day. They are 750 mg. I still have a bowel muscle, but, the Doctor said it is very wimpy. lol Due to my non existant bowel nerves, my muscle is shot too. This has all happened because of my diabetes, and stroke. On one of the test, I scored a twenty, she said most people, would have scored triple that. The other test, she said most people score between 20-25. I scored between 300-350. I have no sensation in my bowel area at all. So, what is the plan? Any cure? Because of such bad nerve damage in my bowel area, I never know when I have to use the bath room. My nerves do not feel any sensation, so they do not send a message to my brain. So, I have accidents on myself all the time. There is no cure, unfortunately. My Doctor is sending me for some biofeedback therapy, to see if it will help a little. My first therapy will be Tuesday, June 24th. If this does not work, which my Doctor does not think it will, the next option will be SNS, which stands for sacral nerve stimulator.
Sacral nerve stimulation (SNS) is conducted through an implanted device that includes a thin insulated wire called a lead and a neurostimulator much like a cardiac pacemaker. The device is inserted in a pocket in the patient's lower abdomen. SNS is first tried on an outpatient basis in the doctor's office with the implantation of a test lead. If the trial treatment is successful, the patient is scheduled for inpatient surgery.
Permanent surgical implantation is done under general anesthesia and requires a one-night stay in the hospital. After the patient has been anesthetized, the surgeon implants the neurostimulator, which is about the size of a pocket stopwatch, under the skin of the patient's abdomen. Thin wires, or leads, running from the stimulator carry electrical pulses from the stimulator to the sacral nerves located in the lower back. After the stimulator and leads have been implanted, the surgeon closes the incision in the abdomen. Finally, if that does not work, there is only one more option, colostomy. Colostomy is a surgical procedure that brings one end of the large intestine out through an opening (stoma) made in the abdominal wall. Stools moving through the intestine drain through the stoma into a bag attached to the abdomen. So, how am I feeling about this news??? I am going to get my umbrella, and do some major dancing. Take care, love you all.